Sunday, July 6, 2008

Viewing my blog?

I am so new to blogging so I am sure there is some way to see who is looking at your blog beside the "Livefeed" thing I found but I don't know what that would be. Anyway, through the live feed you can see the area in which the person reading is from and how they got to your blog. Most are from my favorite forum EVER but I also today saw one through Google, searching for Echogenic Focus. So I wanted to write a little to the people who are searching for answers, who are scared and who are lost in finding out that their child may have Down syndrome or some other chromosomal abnormality.

First off, congratulations on your upcoming or recent arrival. Your child will amaze you, "typical" or not. You are probably scared, I've been there. I may be new to this but I have found that most of us have the same feelings. Obviously you are searching for information, for hope. I too searched the internet into the wee hours of the morning. Not fun and some of the stuff you will read...OH MY! NDSCCENTER.ORG is the National Down Syndrome Congress website and they have great UPDATED information, so much out there is outdated and scary. There's also many parents out there waiting to tell you all about their wonderful children and lots of blogs out there too. I have found that most people who have children with Down syndrome are so approachable and are more than happy to help you understand DS and most of us are here to listen to you vent, remember...we've been there. Most people don't say "Hey, I think I would like to have a child with a disability" so anger and disappointment is normal and common. I welcome you to reach out to me if you'd like and I can help with whatever I can and share the wonderful sites I have found that have helped me. You're NOT alone.

1 comment:

Jen said...

Great post! I was so disappointed with the information the hospital gave me on DS after Emmaline's birth (2/07). The only positive things I heard were from my mom and my oldest sister (who also happens to have a daughter with DS). Emmaline is so much more than I ever expected her to be in the beginning and I have the same hopes for her as I do for our other two, marriage, family, etc. These kids are amazing in so many ways and we are truly blessed to be their mommies!