Conversations with Rudy

This morning I had the great JOY of having both my boys in bed with me. It was me, then Vinnie and next to Vinnie was Rudy. This is how the conversation went

Rudy: I love him
Me: He loves you
Rudy: Mom
Me: Yeah bud?
Rudy: I really REALLY love him
Me: You're very sweet buddy, don't pull his fingers backwards
Rudy: (while rubbing his head against Vinnie's head) He's me BIG brother
Me: No Rudy, he's your little brother
Rudy: Oh yeah. He's my baby
Vinnie: Bah bah bah pllll
Rudy: I love you mommy


You think Vinnie has a lifetime buddy? I sure hope so!

Big E!

Yum! And that's all I have to say about that. Ok, not really. We will be there as much as possible to hang out with daddy and see the animals. And if for some strange reason you happen to have a motorized scooter thingy that I could borrow please let me know, it could make someone very happy...I think.

I should be getting the DS Buddy Walk letters out soon and don't forget if you can have a donation bucket at your work let me know (Nana Lou, I have one for you). Registration at 10am, walk at 11am.

Dear....

Dearest ______,



Your most recent mail was just obnoxious. I can only do so much and after much thought and searching I have found that opening up to you does more harm than good. I am looked upon as a lunatic for having feelings about my son having Down syndrome and the way the world reacts to and treats people with disabilities. I dare you to be me for a day and see what it's like. Try dealing with the inner most emotions of raising a child with special needs and have someone on your case about the most infintile things, dragging your husband away from you to do stupid chores while you are home dealing with a toddler and a new baby (with Down syndrome!!), a house that is incomplete, therapies, doctor appointments, the unknowns of the future all while running a house and raising a family. Step into my shoes for just a day and then PLEASE PLEASE PLEASE let me know if the e-mail pity party for yourself needed to be sent to me? Grow up.

Update on today.

We had a great time in the "treatment" room. Kind of strange having a room FULL of people, no curtains or anything...did I say FULL yet? OMG! FULL! I think it went pretty well but I am not the patient. I am hoping that Becki continues to feel good or even OK through out the next few weeks. Since she is receiving a doses every 4 weeks and I believe a smaller dose they (the nurses) say she probably won't have a lot of the common side effects. Keep on praying! Blood test September 12th, 15th and 18th. Neurologist 22nd? And next dose October 3rd.

Tomorrow

Tomorrow I will go with Becki to her first chemotherapy treatment. We have Mad Libs, Family Feud, and a couple puzzle books to keep us occupied. We are hoping NOT to get kicked out for being obnoxious but you just never know with us. Please remember to pray that everything goes smoothly and this helps slow down the progress of the disease. We might start a blog about MS and chemotherapy which would be nothing but hilarious coming from the two of us. I'm sure that this will come up in conversation tomorrow so keep an eye out for it!! Thanks for supporting her (and me) and for all your prayers!

Guess what...

This is Rudy's newest thing. Guess what is followed by nurmerous things usually something about the day or what he has in his hand or what's on TV. My favorite is "California". He has just started "chicken butt".